On August 24th the Walton report into Access to neuromuscular care was released. It is a damning report that shows a 12 years age difference in Life Expectancy. Duchenne sufferers in the North East live on average into 30's and that contrasts sharply to the South West which is a shocking 18 years. Care in Wales and Northern Ireland is even worse.
Read for yourself here:- http://www.muscular-dystrophy.org/assets/0000/9943/Walton_report.pdf
Friday, 28 August 2009
Wednesday, 26 August 2009
duchennemen is now only available at .net16.net
Finally managed to access sitesled and have removed my account. You can now only find duchennemen at http://duchennemen.net16.net/index.html Please drop by for all the latest news from the adult Duchenne population. Coming up in this blog will be periodic snapshots into my DMD life. duchennemen has been updated the editorial is now corrected.
Take care guys!
Remember duchennemen is now at http://duchennemen.net16.net/index.html
Ian
Take care guys!
Remember duchennemen is now at http://duchennemen.net16.net/index.html
Ian
Saturday, 15 August 2009
Duchennemen has moved
Hi all, Sadly my previous web host has become unuseable, I cannot access my account, I've tried for weeks. duchennemen's new address is http://duchennemen.net16.net
Please drop by whenever you feel the need. Sorry for the the delay in service!
Ian
Please drop by whenever you feel the need. Sorry for the the delay in service!
Ian
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